RESOURCES
All Resources
Omar Gonzalez – Trisomy 13
Though this has not been an easy journey, it is one I would pick a million times over, just to meet our sweet boy. My husband and I first learned something was “wrong” when I was about 11 weeks...
Journey Hoffman
"Journey is not and never will be a diagnosis, she is Journey, and she has her own story to be written by the hand of God." Theodore Roosevelt wrote, “Never throughout history has a man who lived a...
Verity Jacobson – Trisomy 18
"Verity’s life is anything but futile! She brings love and joy to our household every single day. Her smile and laugh light up our world." I had never heard of Edwards Syndrome before I got the...
Carter R – Trisomy 13
"I would do it all again just to have the chance to hold my baby one more time." On April 4, 2020 my life changed forever. I went into my 13 week ultrasound only to be told the baby was showing...
Aaliyah Pineda – Trisomy 13
Aaliyah's life is truly a blessing. She's our angel. Our miracle baby. A hungry warrior. My baby girl's name is Aaliyah Esperanz and she has trisomy 13. Ummmm. We didn't know anything ahead of time....
Video – SOFT 2020 Virtual Conference Closing Event
This video is a replay of the SOFT 2020 Virtual Conference delivered by Josh Bradley.From the SOFT 2020 Virtual Conference. https://youtu.be/Rm6kJvN0_5Y
Video – Update 2020 on Seizures, Light Sensitivity and Headaches
Dr. Steven Cantrell - Seizures, Light Sensitivity and Headaches From the SOFT 2020 Virtual Conference Dr. Cantrell’s workshop, Seizures, Light Sensitivity and Headaches will review the many triggers...
Tumor Risk and Surveillance in Trisomy 18
Dr. Stephen BraddockTumor Risk and Surveillance in Trisomy 18. Dr. Braddock discusses Wilms tumor and other conditions that a child with trisomy should be monitored for. From the SOFT 2020 Virtual...
