RESOURCES

 

Parenting Resources

Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new information has become available and is the only known resource of its kind. The updated book is available here in English (click the cover), Spanish and Portuguese (click the links below). Please feel free to reproduce as many copies as desired (but don’t change any of the text).

Newborn Airway Evaluation and Mandibular Distraction in Trisomy 18

From the SOFT 2021 Virtual Conference Professional Panel: Newborn Airway Evaluation and Mandibular Distraction in Trisomy 18Glenn E. Green, MD, Professor, Department of Otolaryngology-Head and Neck...

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Perspectives on the Care of Children with Trisomy 18/13 – 2021 Version

Perspectives on the Care of Children with Trisomy 18/13 – 2021 Version

From the SOFT 2021 Virtual Conference Professional Panel: 2021 Version of Perspectives on the Care of Children with Trisomy 18/13John C. Carey, MD, MPH, FAAP, FACMGG, Professor Emeritus, University...

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Congenital Heart Surgery in Trisomy 13 and 18

Congenital Heart Surgery in Trisomy 13 and 18

From the SOFT 2021 Virtual Conference Professional Panel Congenital Heart Surgery in Trisomy 13 and 18 - An Update and Future Directionswith Dr. Katherine Kosiv, Assistant Professor of Clinical...

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Interdisciplinary Care of Children with Trisomy 13 and 18

Interdisciplinary Care of Children with Trisomy 13 and 18

From the SOFT 2021 Virtual Conference Professionals Panel. Interdisciplinary Care of Children with Trisomy 13 and 18with Dr. Nicole Birge, MD, Medical Director of the Neonatal Intensive Care Unit at...

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