RESOURCES
Trisomy 13
In Stitches – Knitting Club
In Stitches Workshop from the 2010 SOFT Conference in Sioux Falls An early workshop in at the 2010 conference in Sioux Falls was for knitters. Not completely according to plan, there were more...
Medical Ethics and Decision Making
Presentation From the 2010 SOFT Conference in Sioux Falls Presenters: Terry Peterson-Henry, D. O. Pediatric Palliative Care and Ellie Schellinger, MA. Medical Ethicist Medicine, although it is...
Healing Your Spirit
Healing Your Spirit Workshop Presentation From the 2011 SOFT Conference in Chicago Presenter: Ms Diane Robinson Notes by: Gerri Meggett This workshop provided a new perspective on God and His plan...
Marriage and Your Trisomy Child
Workshop Presentation from the 2011 SOFT Conference in Chicago Presenter: Valerie Lentz, LCSW Workshop notes by Gerri Meggett Families that have children with special needs get to celebrate...
We are as Scared as You
Those in the ER are as Scared as Parents Workshop Presentation from the 2010 SOFT Conference in Roanoke Presented by: Dr. Kerry Powell - Emergency Room Physician In introducing his workshop, Dr....
New Molecular Genetics
New Molecular Diagnostic Methods in Genetics Workshop Presentation From the 2010 SOFT Conference in Sioux Falls Presenter: Patricia Crotwell, Ph.D. There have been advances in genetic testing in...
The Nature of Hope
The Nature of Hope: A Live Interview with the Family of Little Erin Workshop Presentation From the 2010 SOFT Conference in Sioux Falls Presenter: Dr. Lawrence Fenton, M.D Dr. Fenton emphasized that...
Developmental Pediatrics and the Medical Home
From the 2011 Chicago SOFT Conference This workshop, presented by Larry W. Desch, MD, FAAP Advocate: Hope Children’s Hospital focuses on the need for special needs children to have a Medical Home....