RESOURCES
Trisomy 18
Look through various resources and information about Trisomy 18
Palliative and Hospice Care
A brief description of Pediatric Palliative Care, Perinatal Palliative Care and Pediatric Hospice Care Pediatric Palliative Care Palliative Care is often recommended for newborns with trisomy 18 or...
Medicaid Waiver, SCHIP, SSI
Medicaid Waiver, SCHIP, SSI, Katie Beckett, TEFRA, etc. Medicaid Waivers Waivers are programs that states can use to test new or existing ways to deliver and pay for health care services in Medicaid...
What Does “Rare” Disorder Mean?
PROFESSIONAL VIEWPOINT: Journal Club All of us at SOFT and the trisomy 18 community worldwide were saddened by the news of the two hospitalizations of Bella Santorum, daughter of Republican...
Medical Ethics and Decision Making
Presentation From the 2010 SOFT Conference in Sioux Falls Presenters: Terry Peterson-Henry, D. O. Pediatric Palliative Care and Ellie Schellinger, MA. Medical Ethicist Medicine, although it is...
Healing Your Spirit
Healing Your Spirit Workshop Presentation From the 2011 SOFT Conference in Chicago Presenter: Ms Diane Robinson Notes by: Gerri Meggett This workshop provided a new perspective on God and His plan...
Marriage and Your Trisomy Child
Workshop Presentation from the 2011 SOFT Conference in Chicago Presenter: Valerie Lentz, LCSW Workshop notes by Gerri Meggett Families that have children with special needs get to celebrate...
We are as Scared as You
Those in the ER are as Scared as Parents Workshop Presentation from the 2010 SOFT Conference in Roanoke Presented by: Dr. Kerry Powell - Emergency Room Physician In introducing his workshop, Dr....
New Molecular Genetics
New Molecular Diagnostic Methods in Genetics Workshop Presentation From the 2010 SOFT Conference in Sioux Falls Presenter: Patricia Crotwell, Ph.D. There have been advances in genetic testing in...