RESOURCES
Trisomy 18
Look through various resources and information about Trisomy 18
International Trisomy Support Groups and Organizations
Provision of information and links does not constitute SOFT USA's endorsement of any group. The International Trisomy 13 and 18 Alliance (ITA) is a volunteer, not-for-profit organization focusing on...
If you ask me, I will tell you
I know we might not have known each other long. Maybe you’re a friendly cashier, or someone buying the same grapes as me at the grocery store. Maybe we’re taking turns on a machine at the gym, or we...
Video: Routine Health Care for Children with Trisomy 18
What should parents and medical professionals know and expect as reasonable health standards for children with Trisomy 18? Dr. John Carey, MD and medical advisor for SOFT discusses current medical...
Grief Shared is Grief Lessened
How to Support a Parent in Grief Wisdom from Bereaved Parents of Children Diagnosed with a Syndrome “People told us that having him would be the hardest thing we ever did. But they were wrong....
Trisomy 13 – A Handbook for Families
When your physician first tells you that your baby may have trisomy 13 (Patau syndrome) or that this diagnosis is suspected, you will be overwhelmed with questions. The first question usually is...
Trisomy 18 – A Handbook for Families
When your Physician first tells you that your baby may have Trisomy 18 (Edward syndrome) or that this diagnosis is suspected, you will be overwhelmed with questions. The first question usually is,...
Preparing for Hannah Faith – A Birth Plan
Birth Plan for Hannah Faith, diagnosed with Trisomy 18 On October 7th 2013, I was 14 weeks pregnant and expecting a call from our genetics counselor to reveal the gender of our third child! Her...
Cardiac Surgeries and Procedures Reported to SOFT, Arrayed by Diagnosis
As new surgeries are reported, SOFT updates this table with cardiac related surgeries and procedures. This data shows the number of surgeries performed by type of cardiac procedure and by the...
