SOFT
  • Support Pathway
    • Expecting a Child
    • Parenting a Child
    • Remembering a Child
    • Medical Professionals
  • Resources
    • About Trisomy
    • Trisomy 18
    • Trisomy 13
    • Related Disorders
    • Prenatal
    • Care Book
    • Publications and Reports
    • Professional Literature
    • SOFT Brochures
    • SOFT’s YouTube Video Channel
    • Family Stories
    • Submit Story
    • Blog
      • Beyond Goodbye
      • News
  • Events
    • Conference
    • Trisomy Awareness Month
    • 2024 Conference Photo Gallery
    • 2023 Conference Photo Gallery
  • About
    • Mission and Values
    • Leadership
    • Medical Board
    • History
  • Contact Us
  • Member
  • DONATE
Select Page
SOFT Member Spotlight – Barbara Llanos

SOFT Member Spotlight – Barbara Llanos

by Terre Krotzer | Jan 15, 2025 | Blog, Family story, Parenting A Child, Stories, Trisomy 13

A Journey of Love and Strength: Barbara Llanos and Addesa Vasquez’s Trisomy 18 Story     Introduction When Barbara Llanos first heard the words Trisomy 18, her world changed forever. The journey of parenting a child with a rare genetic condition is filled with...
SOFT Member Spotlight – Luz Amalia Veloz Gonzalez

SOFT Member Spotlight – Luz Amalia Veloz Gonzalez

by Terre Krotzer | Jan 15, 2025 | Blog, Family story, Parenting A Child, Stories, Trisomy 13

A Mother’s Journey of Hope and Resilience: Luz Amalia Veloz Gonzalez and Mia Ariely Juárez Velo       Introduction Luz Amalia Veloz Gonzalez’s world was turned upside down when she received the news that her daughter, Mia Ariely Juárez Veloz, had been...
SOFT Member Spotlight – Lilianna Wiebe

SOFT Member Spotlight – Lilianna Wiebe

by Terre Krotzer | Jan 15, 2025 | Blog, Family story, Parenting A Child, Stories, Trisomy 13

A Parent’s Journey: Lilianna Wiebe and Alyosha Nicodemus     Introduction The journey of parenthood is often unpredictable, filled with joys, challenges, and moments of profound reflection. For Lilianna Wiebe and her husband, the path took an unexpected turn when they...
SOFT Member Spotlight – Nicole Whitaker

SOFT Member Spotlight – Nicole Whitaker

by Terre Krotzer | Jan 15, 2025 | Blog, Family story, Parenting A Child, Stories, Trisomy 13

The Strength of a Mother: A Journey Through Trisomy 13   Introduction Receiving an unexpected medical diagnosis for a child is one of the most life-altering experiences a parent can face. The emotions range from fear and uncertainty to unwavering love and...
SOFT Member Spotlight – Brittany Diaz

SOFT Member Spotlight – Brittany Diaz

by Terre Krotzer | Jan 12, 2025 | Blog, Family story, Parenting A Child, Stories, Trisomy 13

A Journey of Love and Strength: Brittany Diaz and Everlii Raine Joy     Introduction Parenthood is a journey of hope, dreams, and unexpected turns. For Brittany Diaz, this journey took a path she never anticipated when she learned of her daughter’s diagnosis. This is...
« Older Entries

Recent Posts

  • American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
  • Trisomy Awareness Month Spotlight – Lynne Stockman
  • Trisomy Awareness Month Spotlight – Raquel Wagner
  • Trisomy Awareness Month Spotlight – Joshua Banks
  • Trisomy Awareness Month Spotlight – Nadin Koharic

Recent Comments

    Archives

    • July 2025
    • May 2025
    • April 2025
    • March 2025
    • February 2025
    • January 2025
    • December 2024
    • August 2024
    • April 2024
    • March 2024
    • February 2024
    • January 2024
    • March 2023
    • February 2023
    • January 2023
    • August 2022
    • April 2022
    • March 2022
    • February 2022
    • January 2022
    • September 2021
    • August 2021
    • July 2021
    • June 2021
    • May 2021
    • April 2021
    • March 2021
    • February 2021
    • January 2021
    • July 2020
    • June 2020
    • May 2020
    • April 2020
    • March 2020
    • January 2020
    • December 2019
    • November 2019
    • December 2018
    • October 2018
    • April 2018
    • August 2017
    • June 2015
    • March 2015
    • March 2014
    • January 2014
    • May 2013
    • January 2013
    • November 2012
    • May 2012
    • March 2012
    • August 2011
    • April 2011
    • January 2011
    • July 2009
    • January 2005

    Categories

    • Beyond Goodbye
    • Blog
    • Español
    • Expecting A Child
    • Family story
    • Medical Professionals
    • News
    • Other
    • Parenting A Child
    • Publications
    • Related Disorders
    • Resources
    • Stories
    • Surgery
    • Trisomy 13
    • Trisomy 18
    • Trisomy 9
    • Uncategorized

    Meta

    • Register
    • Log in
    • Entries feed
    • Comments feed
    • WordPress.org

    Trisomy 18, Trisomy 13 and Related Disorders

    BECOME A MEMBER
    DONATE

    ABOUT US

    History

    Leadership

    SOFT Brochures

    INFORMATION

    Publications (English, Spanish, Portuguese), and Reports

    The Care Book

    Trisomy 18

    Trisomy 13

    Related Disorders

    Expecting a Child

    Parenting a Child

    Remembering a Child

     Admin Reports

    Blog

    Family Stories

    News

    Submit Story

    Events

    Conference

    Trisomy Awareness Month

    SITE SEARCH

    © Copyright 2024 Powered by BrandSites a Success Engine company. All rights reserved.

    Terms & Conditions | Privacy Policy

    Lynne W. Stockman

    Jamie Lint, A.A.S.N

    Internal Nurse Specialist in Tazewell County Virginia

    Jamie & Kristi Lint have 3 children Zion, trisomy 13 (angel), Mariah, and Olivia.

    Lynne W. Stockman

    Shaji C. Menon, MD

    Pediatric Cardiology
    UPMC Heart and Vascular Institute
    Chambersburg, PA

    Shaji Menon, MD, is a pediatric cardiologist with UPMC Heart and Vascular Institute and is board-certified in pediatrics and pediatric cardiology by the American Board of Pediatrics. He received his medical degree and Doctorate in Pediatrics from Baroda Medial College, India. He completed his residency at New York University Medical Center, followed by his fellowships in Pediatric Cardiology at Mayo Clinic and Cardiac MRI at the University of Virginia. Dr. Menon also completed a Master of Science in Clinical Investigation from the University of Utah. He is a professor of pediatrics at the University of Utah.

     

    Lynne W. Stockman

    Shaji C. Menon, MD

    Pediatric Cardiology – University of Pittsburgh Medical Center

    Shaji Menon, MD, is a pediatric cardiologist with UPMC Heart and Vascular Institute and is board-certified in pediatrics and pediatric cardiology by the American Board of Pediatrics. He received his medical degree and Doctorate in Pediatrics from Baroda Medial College, India. He completed his residency at New York University Medical Center, followed by his fellowships in Pediatric Cardiology at Mayo Clinic and Cardiac MRI at the University of Virginia. Dr. Menon also completed a Master of Science in Clinical Investigation from the University of Utah. He is a professor of pediatrics at the University of Utah.

    Lynne W. Stockman

    Ann Barnes, RN

    Mother of a child born with trisomy 18
    Co-authored the book: Care of the Infant and Child with Trisomy 18 or Trisomy 13

    Lynne W. Stockman

    James M. Hammel, M.D.

    Staff Surgeon, Helen DeVos Children’s Hospital
    Grand Rapids, MI (2021-2024)

    Associate Professor, University of Nebraska Medical Center, Omaha (2011-2021)
    Clinical Service Chief, Cardiothoracic Surgery, Children’s Hospital and Medical Center, Omaha (2010-2021)
    Assistant Professor, University of Nebraska Medical Center, Omaha (2005-2011)
    Staff Surgeon, Children’s Hospital and Medical Center, Omaha (2005-2010)
    Hospital for Sick Children Pediatric Cardiac Fellowship (2004-2005)
    University of Iowa Thoracic Residency (2001-2004)
    University of Nebraska General Surgery Residency (1994-2001)
    University of Michigan Inteflex Program (BS 1991, MD 1994)

    Lynne W. Stockman

    Lynne W. Stockman, D.O

    Board Certified in Family Medicine. 
    Graduated 1989 from Kansas City University of Medicine and Biosciences.

    Josh Bradley

    President
    Dawson – trisomy 18 (17 years old)

    

    South Carolina

    Josh and Renae Bradley are proud parents to four children. Among their kids, Dawson, who is now 17 years old and living with trisomy 18. Josh and Renae are dedicated individuals who are passionate about SOFT’s mission to support families with children diagnosed with trisomy 18, 13, or related disorders.

    Renae actively engages through the Social Media Committee, oversees State Proclamations during Trisomy Awareness Month (TAM), and is chair for SOFT’s state representatives. She holds the position of SOFT treasurer, bringing with her many years of administrative expertise.

    Josh possesses significant experience in the field of non-profit leadership, organization, and development. Josh contributes his talents to the SC Baptist Convention. Notably, he played a key role in the revamping of SOFT’s mission statement and vision framework, furthering the organization’s overarching goals and objectives.

    Renae Bradley

    Director of National Conference
    Dawson – trisomy 18 (Angel)

    

    South Carolina

    Josh and Renae Bradley are proud parents to four children. Josh and Renae are dedicated individuals who are passionate about SOFT’s mission to support families with children diagnosed with trisomy 18, 13, or related disorders.

    Renae actively engages through the Social Media Committee, oversees State Proclamations during Trisomy Awareness Month (TAM), and is chair for SOFT’s state representatives. She holds the position of SOFT treasurer, bringing with her many years of administrative expertise.

    Josh possesses significant experience in the field of non-profit leadership, organization, and development. Josh contributes his talents to the SC Baptist Convention. Notably, he played a key role in the revamping of SOFT’s mission statement and vision framework, furthering the organization’s overarching goals and objectives.

    Nick Holladay

    Nick Holladay

    Director of Technology

    

    Arizona

    Kelsey Hyman

    Social Media Manager

    

    South Carolina

    Kelly Hernandez

    Director of Social Media
    Board of Directors
    Akaiya – trisomy 18 (19 years old)

    

    Illinois

    Kelly and Sal Hernandez have three children. Akaiya was born with trisomy 18. Kelly serves as chairman of the social media committee to create and expand SOFT’s presence through social media. She is actively involved in all aspects of TAM (Trisomy Awareness Month) in March. Kelly has been a special educator for over 13 years. Kelly believes communication is one of the important ways that we keep the doorways open to each other and foster that feeling of respect for everyone’s unique perspective.

    Gina Csontos

    Board of Directors
    Mark – Trisomy 13 (angel)

    

    Florida

    Gina and Glenn Csontos have four children. Mark (trisomy 13) has been an inspiration to their family. Gina and Glenn have been members of SOFT since 1995. Gina is a Neonatal Nurse Practitioner and has the opportunity to work with infants newly diagnosed with trisomy. They are bilingual and speak and write in Spanish. Gina has communicated with many Spanish speaking families on behalf of SOFT.

    Angie McCauley

    Angie McCauley

    Board of Directors
    Madison – Trisomy 18

    

    Virginia

    Angie and Micah McCauley are the proud parents of two beautiful daughters, Madison (trisomy 18) and Emma. Angie has unique skills to help things run smoothly and efficiently. They want to continue to share their experiences and find opportunities for families to make connections with medical professionals and in education. They strive to spread awareness, to grow and expand our outreach, to provide accurate information on trisomy, while maintaining the family oriented value and goals of SOFT. 

    Trisomy Awareness Products order form

    • SOFT Trisomy Awareness Month Products

    • image
    • "Changing the NARRATIVE together": wristbands in Red and Blue with yellow.

      If choosing assorted, please enter preference in comments at bottom of form.
      If choosing assorted, please enter preference in comments at bottom of form.
      If choosing assorted, please enter preference in comments at bottom of form.
    • Includes 3 wristbands, 1 lanyard & 5 postcards for a $15 donation.
      If choosing assorted please enter preference in comments at bottom of form.
    • Changing the NARRATIVE together lanyards.

    • image
    • Price: $5.00
      If choosing assorted please enter your color preference in comments at bottom of form.