What is something unique and special about your child with trisomy that you wish more people knew?

Stephanie gives the biggest & best hugs & has the most forgiving heart!! She loves everyone & always has a smile even when she’s hurting.

Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?

I believe it’s important to raise awareness about Trisomy conditions because there are more children born every day with this. Being kind would be a great start!

During Trisomy Awareness Month, what message would you like to share with the world about your family’s journey and the trisomy community?

Every family’s journey has similarities but each journey is different. In the 34 years that I have been Stephanie’s Mom she’s fallen thru the crack so many times!! I’ve been told that it’s because Trisomy 13 babies usually don’t live past the age of 2. SOFT has given parents a place to network & that’s a huge gift!!