NEWS
2025 SOFT Impact Report: Advancing Family-Centered Support for Trisomy 18, Trisomy 13, and Trisomy 9
2025 SOFT Impact Report Families facing a diagnosis of Trisomy 18, Trisomy 13, Trisomy 9, or related conditions often encounter complex medical information, limited resources, and profound emotional...
November 2025 Donor Thank You | Honoring Our SOFT Community of Trisomy Support
With Gratitude: Honoring Our November 2025 Donors As we reflect on the month of November and enter the season of gratitude, we want to pause and offer our sincere thanks to the individuals and...
How SOFT Created the Trisomy 18 & Trisomy 13 Expectant Parent Books: A Deep Dive on the SOFT Podcast
How the Trisomy 18 and Trisomy 13 New and Expectant Parent Books Came to Life Families who receive a Trisomy 18 (Edwards syndrome) or Trisomy 13 (Patau syndrome) diagnosis often describe their first...
SOFT Community Gratitude Report — October 2025 Donors
At SOFT, everything we do is rooted in compassion: Supporting Families and Changing the Narrative surrounding Trisomy 13, Trisomy 18, Trisomy 9, and related diagnoses. That work is only possible...
AAP Report on Trisomy 18 and 13: How New Guidance Is Changing Care for Families and Clinicians
A Historic Shift in Trisomy Care The AAP Report on Trisomy 18 and 13 represents one of the most significant shifts in neonatal ethics and family care in decades.In this episode of the SOFT Podcast,...
Living in the Moment with Bree: A Family’s Journey with Trisomy 13
Discover Bree’s story — a powerful short film about a family’s journey with Trisomy 13, shared by Holland Bloorview Kids Rehabilitation Hospital.
SOFT Newsletter October
Dear SOFT Families and Friends, As we move into the final months of the year, I’m encouraged by the incredible progress we’re seeing across the SOFT community. From new educational resources to...
SOFT Earns Gold Seal of Transparency from Candid — Building Trust Through Openness and Impact
At SOFT (Support Organization for Trisomy 18, 13, and Related Disorders), transparency and trust are at the heart of everything we do. Families turn to us for reliable support, compassionate...
Honoring RJ’s Light: The Manley Family’s Tribute Shines Bright
On September 18, 2015, Kahle Giesen and RJ’s father welcomed their son, RJ Manley, into the world. Born with Trisomy 18, RJ lived for two precious days. Though his time was short, his life continues...








































