NEWS
Living in the Moment with Bree: A Family’s Journey with Trisomy 13
Discover Bree’s story — a powerful short film about a family’s journey with Trisomy 13, shared by Holland Bloorview Kids Rehabilitation Hospital.
SOFT Newsletter October
Dear SOFT Families and Friends, As we move into the final months of the year, I’m encouraged by the incredible progress we’re seeing across the SOFT community. From new educational resources to...
SOFT Earns Gold Seal of Transparency from Candid — Building Trust Through Openness and Impact
At SOFT (Support Organization for Trisomy 18, 13, and Related Disorders), transparency and trust are at the heart of everything we do. Families turn to us for reliable support, compassionate...
Honoring RJ’s Light: The Manley Family’s Tribute Shines Bright
On September 18, 2015, Kahle Giesen and RJ’s father welcomed their son, RJ Manley, into the world. Born with Trisomy 18, RJ lived for two precious days. Though his time was short, his life continues...
SOFT Conference 2025 Highlights | Indianapolis
SOFT Conference 2025 – Highlights from Indianapolis, Indiana We are excited to share the highlight video from the SOFT Conference 2025 in Indianapolis, Indiana! This year marked the 39th SOFT...
SOFT Utah Family BBQ 2025
Utah SOFT Families Annual BBQ 2025 | Trisomy 13 & Trisomy 18 Community
When Love and Strength Lead the Way: A Trisomy 18 Story in The New York Times
Our hearts are full seeing Jacqueline and Noah's story in The New York Times! This beautiful family represents what we know to be true - every child's story matters, every family's love is powerful,...
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 –...
SOFT Welcomes Nick Holladay as Executive Director to Lead Strategic Growth and National Expansion
Statement from the Board of Directors of SOFT (Support Organization for Trisomy 18, 13 & Related Disorders) [Rochester, NY, July 1, 2025] The Support Organization for Trisomy 18, 13, and Related...








































