BLOGS

A Message from the SOFT Medical and Scientific Advisory Board Regarding Covid-19

A Message from the SOFT Medical and Scientific Advisory Board Regarding Covid-19

To Our SOFT Family: You likely know by now that the 2020 SOFT Conference will be postponed until July 2021 due to concerns for our health related to the coronavirus. While updates on COVID-19 (coronavirus illness) pandemic are publicized on the TV news regularly and...

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Cardiac Surgeries and Procedures Reported to SOFT, Arrayed by Diagnosis

Cardiac Surgeries and Procedures Reported to SOFT, Arrayed by Diagnosis

As new surgeries are reported, SOFT updates this table with cardiac related surgeries and procedures. This data shows the number of surgeries performed by type of cardiac procedure and by the diagnosis of the child.  Grab the slider bar at the end of the report to...

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March is Trisomy Awareness Month

March is Trisomy Awareness Month

It's March and in SOFT's world that means Trisomy Awareness Month! Every March our SOFT community celebrates Trisomy Awareness Month. This is a time when we share awareness and education of Trisomy conditions, celebrate our children who are beating the odds and...

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Video – Cardiac Surgery in Infants with Trisomy 18 and Trisomy 13

Video – Cardiac Surgery in Infants with Trisomy 18 and Trisomy 13

A new day is dawning for our kids with heart issues. For years many of our families have had life saving surgeries denied simply because of their child's diagnosis. Dr. James Hammel at Children's Hospital in Omaha is looking beyond the label, giving our families hope...

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Perspectives on the Medical and Genetic Aspects of the Trisomy 18 & 13 Syndromes

Perspectives on the Medical and Genetic Aspects of the Trisomy 18 & 13 Syndromes

Presented at the 2012 SOFT Conference, St. Louis  Dr. Carey began by saying questions were welcomed. He also noted most participants were familiar with the basics of trisomy, so he would emphasize new information.  The result was he completed about 10% of...

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