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Trisomy 9 Families & Experts Share Stories, Research, and Support | Talking Trisomy

Trisomy 9 Families & Experts Share Stories, Research, and Support | Talking Trisomy

Talking Trisomy: Families, Experts, and the Future of the Trisomy 9 Community For many families, receiving a Trisomy 9 diagnosis can feel isolating and overwhelming. Because Trisomy 9 is rare, parents often struggle to find reliable, up-to-date information about the...

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Living With Trisomy 18:Choosing The ‘Life Narrative’ For Izzie

Living With Trisomy 18:

Choosing The ‘Life Narrative’ For Izzie

Introduction Families who receive a diagnosis like Trisomy 18 are often introduced to their child’s story through statistics, grim predictions, and assumptions about what life will—or will not—look like. Information is fragmented, perspectives are narrow, and hope is...

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