RESOURCES
Parenting Resources
Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new information has become available and is the only known resource of its kind. The updated book is available here in English (click the cover), Spanish and Portuguese (click the links below). Please feel free to reproduce as many copies as desired (but don’t change any of the text).

How SOFT Began: A Founding Story for Trisomy Awareness Month 2026
How SOFT Began: A Founding Story for Trisomy Awareness Month 2026 March is Trisomy Awareness Month — a time when families, medical professionals, and advocates unite to share knowledge, raise...
Trisomy Awareness Month: Medical Panel Answers Family Questions for Talking Trisomy Podcast
Trisomy Awareness Month: Medical Panel Answers Family Questions As part of Trisomy Awareness Month 2026, Talking Trisomy convened a panel of experienced clinicians to address questions submitted by...
Trisomy 13 Medical Panel – Trisomy Awareness Month 2026
Trisomy 18 Medical Panel – Trisomy Awareness Month 2026
Living With Trisomy 18:
Choosing The ‘Life Narrative’ For Izzie
Introduction Families who receive a diagnosis like Trisomy 18 are often introduced to their child’s story through statistics, grim predictions, and assumptions about what life will—or will not—look...
Dawson’s Story: 18 Years with Trisomy 18, Advocacy, and Choosing Joy
Watch the full podcast episode now:YouTube: https://youtu.be/Muud-blNlwQSpotify: https://open.spotify.com/episode/7l2bjulsdxvfZdFUXAhDdO?si=mO2LDU5jQv6Sk8DqKwKJuw When Renae and Josh Bradley...
A Trisomy 13 Journey of Courage, Grace, and Support: The Story of Faith Banks
When Air Force pilot Raliene Banks learned her daughter Faith likely had Trisomy 13, her world shifted instantly. What followed was a journey of love, gut-wrenching decisions, grace, and a legacy...
A Trisomy 18 Journey of Courage, Care, and Joy: The Story of Dane Sogge
When families first hear the diagnosis Trisomy 18, also known as Edwards syndrome, they often face a tidal wave of fear, medical uncertainty, and conflicting information. In this powerful SOFT...





































