RESOURCES
Parenting Resources
Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new information has become available and is the only known resource of its kind. The updated book is available here in English (click the cover), Spanish and Portuguese (click the links below). Please feel free to reproduce as many copies as desired (but don’t change any of the text).

SOFT Member Spotlight – Samia Hussain
A Mother’s Unwavering Love: Samia Hussain’s Journey with Muhammad Abdullah Ali Introduction Parenthood is often unpredictable, but for Samia Hussain, the journey took an unexpected turn...
SOFT Member Spotlight – Kenendy Jarrell
A Journey of Strength: Kennedy Jarrell’s Trisomy Story Introduction Life often presents unexpected challenges, and for Kennedy Jarrell, one of those challenges came in the form of a trisomy...
2025 Trisomy Awareness Month Event Calendar
Click below to register for our upcoming events. March 1st - 7pm CST: Welcome to Trisomy Awareness Month March 8th - 7pm CST: Family Game Night Register Here to attend on Zoom March 9th - 6pm CST:...
Trisomy 18 and 13 Medical Panel – Trisomy Awareness Month 2025
SOFT Member Spotlight – Barbara Llanos
A Journey of Love and Strength: Barbara Llanos and Addesa Vasquez’s Trisomy 18 Story Introduction When Barbara Llanos first heard the words Trisomy 18, her world changed forever. The...
SOFT Member Spotlight – Luz Amalia Veloz Gonzalez
A Mother's Journey of Hope and Resilience: Luz Amalia Veloz Gonzalez and Mia Ariely Juárez Velo Introduction Luz Amalia Veloz Gonzalez's world was turned upside down when she received the...
SOFT Member Spotlight – Lilianna Wiebe
A Parent’s Journey: Lilianna Wiebe and Alyosha Nicodemus Introduction The journey of parenthood is often unpredictable, filled with joys, challenges, and moments of profound reflection. For...
SOFT Member Spotlight – Nicole Whitaker
The Strength of a Mother: A Journey Through Trisomy 13 Introduction Receiving an unexpected medical diagnosis for a child is one of the most life-altering experiences a parent can face. The...