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Parenting Resources

Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new information has become available and is the only known resource of its kind. The updated book is available here in English (click the cover), Spanish and Portuguese (click the links below). Please feel free to reproduce as many copies as desired (but don’t change any of the text).

Video – Heartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18

Video – Heartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18

Dr. Nicole Birge & Dr. Meaghann WeaverHeartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18. From the SOFT 2020 Virtual Conference....

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Video – Advances in the Care of Newborns & Infants with Trisomy 18 and 13

Video – Advances in the Care of Newborns & Infants with Trisomy 18 and 13

From the 2020 SOFT Virtual ConferenceSession 2 of the Professionals PanelDr. Glenn Green & Dr. Shaji Menon discuss Advances in the Care of Newborns & Infants with Trisomy 18 and 13 Recorded...

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Common Problems of Babies with Trisomy 18 or Trisomy 13

Common Problems of Babies with Trisomy 18 or Trisomy 13

A consistent list of problems and concerns has been reported by parents through the years. Viability of their newborn is their first concern, followed by decisions about management of care. Feeding difficulties and constipation are common, often lifelong problems; care of infants with these issues follows below.

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