RESOURCES
Parenting Resources
Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new information has become available and is the only known resource of its kind. The updated book is available here in English (click the cover), Spanish and Portuguese (click the links below). Please feel free to reproduce as many copies as desired (but don’t change any of the text).

Trisomy 18 Medical Panel – Trisomy Awareness Month 2024
Trisomy 13 Medical Panel – Trisomy Awareness Month 2024
International Trisomy Alliance (ITA) Publications
Italy-O2 The International Trisomy Alliance (ITA) website is no longer in use. This organization has produced many excellent publications which families can read and...
Video – 2022 SOFT Medical Advisory Board Round Table
First ever SOFT Medical Advisory Board Round TableRecorded March 18, 2022 Featuring: Dr. John C. Carey Dr. Glenn Green Dr. James Hammel Dr. Shaji Menon Dr. Scott Showalter This video is the replay...
Video – Perspectives on the Care and Management of Children with Trisomy 13 and 18 Syndromes
Intermountain Children's Primary Hospital - Pediatric Grand Rounds John C. Carey, MD, MPH, FAAP, FACMG Emeritus ProfessorUniversity of Utah School of MedicinePediatric Genetics Primary Children’s...
Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health
From the SOFT 2021 Virtual Conference. Dr. Steven Cantrell, OD - Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health.
Fitting and Adjusting Mobility Equipment
From the SOFT 2021 Virtual ConferenceFitting, Adjusting and Modifying Mobility Equipment - Strategies for Adults and Children with Trisomies Michael J. Workman PT C/NDT
Aquatic Therapy
From the SOFT 2021 Virtual Conference. Aquatic Therapy - Briana Demars OTA