RESOURCES
Surgeries
Introducing Our New Trisomy 9 Parent Resource Guide
Introducing Our New Trisomy 9 Parent Resource Guide We are honored to share the launch of the Trisomy 9: New and Expectant Parent Resource Guide, a comprehensive new resource created to support...
Dawson’s Story: 18 Years with Trisomy 18, Advocacy, and Choosing Joy
Watch the full podcast episode now:YouTube: https://youtu.be/Muud-blNlwQSpotify: https://open.spotify.com/episode/7l2bjulsdxvfZdFUXAhDdO?si=mO2LDU5jQv6Sk8DqKwKJuw When Renae and Josh Bradley...
2025 SOFT Impact Report: Advancing Family-Centered Support for Trisomy 18, Trisomy 13, and Trisomy 9
2025 SOFT Impact Report Families facing a diagnosis of Trisomy 18, Trisomy 13, Trisomy 9, or related conditions often encounter complex medical information, limited resources, and profound emotional...
A Trisomy 13 Journey of Courage, Grace, and Support: The Story of Faith Banks
When Air Force pilot Raliene Banks learned her daughter Faith likely had Trisomy 13, her world shifted instantly. What followed was a journey of love, gut-wrenching decisions, grace, and a legacy...
A Trisomy 18 Journey of Courage, Care, and Joy: The Story of Dane Sogge
When families first hear the diagnosis Trisomy 18, also known as Edwards syndrome, they often face a tidal wave of fear, medical uncertainty, and conflicting information. In this powerful SOFT...
How SOFT Created the Trisomy 18 & Trisomy 13 Expectant Parent Books: A Deep Dive on the SOFT Podcast
How the Trisomy 18 and Trisomy 13 New and Expectant Parent Books Came to Life Families who receive a Trisomy 18 (Edwards syndrome) or Trisomy 13 (Patau syndrome) diagnosis often describe their first...
AAP Report on Trisomy 18 and 13: How New Guidance Is Changing Care for Families and Clinicians
A Historic Shift in Trisomy Care The AAP Report on Trisomy 18 and 13 represents one of the most significant shifts in neonatal ethics and family care in decades.In this episode of the SOFT Podcast,...
COMING SOON: Room 119 — A Trisomy 13 Story of Love and Courage
Discover Room 119 — Michelle Stewart’s moving true story of baby Adaeze, a three-pound miracle who changed lives through her love and courage.







































