RESOURCES
Trisomy 18
Look through various resources and information about Trisomy 18
SOFT Member Spotlight – Barbara Llanos
A Journey of Love and Strength: Barbara Llanos and Addesa Vasquez’s Trisomy 18 Story Introduction When Barbara Llanos first heard the words Trisomy 18, her world changed forever. The...
SOFT Member Spotlight – Luz Amalia Veloz Gonzalez
A Mother's Journey of Hope and Resilience: Luz Amalia Veloz Gonzalez and Mia Ariely Juárez Velo Introduction Luz Amalia Veloz Gonzalez's world was turned upside down when she received the...
SOFT Member Spotlight – Lilianna Wiebe
A Parent’s Journey: Lilianna Wiebe and Alyosha Nicodemus Introduction The journey of parenthood is often unpredictable, filled with joys, challenges, and moments of profound reflection. For...
SOFT Member Spotlight – Nicole Whitaker
The Strength of a Mother: A Journey Through Trisomy 13 Introduction Receiving an unexpected medical diagnosis for a child is one of the most life-altering experiences a parent can face. The...
SOFT Member Spotlight – Brittany Diaz
A Journey of Love and Strength: Brittany Diaz and Everlii Raine Joy Introduction Parenthood is a journey of hope, dreams, and unexpected turns. For Brittany Diaz, this journey took a path she...
Charlotte Whitaker – Trisomy 13
Charlotte’s Journey: A Warrior Princess’s Fight Against All Odds Our journey with Charlotte began long before she was born. At 27 weeks, we received the results of a Non-Invasive Prenatal...
2024 SOFT Conference Workshop: Cardiac Surgery In Infants with Trisomy 18 and 13
This workshop was presented at the 2024 SOFT Conference in Minneapolis, MN on July 12, 2024.Please note that the Doctor Q&A is also included on this video.
Perspectives on the Care and Management of Children with Trisomy 13 & 18 Syndromes
Perspectives on the Care and Management of Children with Trisomy 13 & 18 Syndromes. Presentation occured at the Grand Rounds on July 12, 2024 in Saint Paul, Minnesota.