RESOURCES
Trisomy 18
Look through various resources and information about Trisomy 18
SOFT Earns Gold Seal of Transparency from Candid — Building Trust Through Openness and Impact
At SOFT (Support Organization for Trisomy 18, 13, and Related Disorders), transparency and trust are at the heart of everything we do. Families turn to us for reliable support, compassionate...
Honoring RJ’s Light: The Manley Family’s Tribute Shines Bright
On September 18, 2015, Kahle Giesen and RJ’s father welcomed their son, RJ Manley, into the world. Born with Trisomy 18, RJ lived for two precious days. Though his time was short, his life continues...
SOFT Conference 2025 Highlights | Indianapolis
SOFT Conference 2025 – Highlights from Indianapolis, Indiana We are excited to share the highlight video from the SOFT Conference 2025 in Indianapolis, Indiana! This year marked the 39th SOFT...
SOFTLY SPOKEN (Support Organization for Trisomy 18, 13, and Related Disorders)
SOFTLY SPOKEN: “FULL CIRCLE” By Kris Holladay Eleven years ago, I was on a flight from Phoenix to Salt Lake City. About the time we would be flying over the Grand Canyon, the pilot speaking from...
SOFT Utah Family BBQ 2025
Utah SOFT Families Annual BBQ 2025 | Trisomy 13 & Trisomy 18 Community
Trisomy Spotlight – Tabitha Grace
What is something unique and special about your child with trisomy that you wish more people knew? Believing that ALL children are a blessing from God, we were excited to welcome our sixth child. At...
When Love and Strength Lead the Way: A Trisomy 18 Story in The New York Times
Our hearts are full seeing Jacqueline and Noah's story in The New York Times! This beautiful family represents what we know to be true - every child's story matters, every family's love is powerful,...
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 –...