RESOURCES
Trisomy 18
Look through various resources and information about Trisomy 18
Parent-reported histories of adults with trisomy 13 syndrome
Click here to view and download a .pdf copy of this article.
La Historia de SOFT
“Los comienzos” La historia de SOFT: Organización de Apoyo para las Trisomías 18, 13 y Trastornos Relacionados. Escrito por Kris Holladay. Recuerdo a…Brandy Woodcox. Nunca olvidaremos su nombre en...
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Newborns with trisomy 13 or 18 can benefit from heart surgery
Republished with permission. Infants with the genetic disorders trisomy 13 or 18 are more likely to survive if they undergo heart surgery, a study from researchers at Stanford and the University of...
Video – Update 2020 on Seizures, Light Sensitivity and Headaches
Dr. Steven Cantrell - Seizures, Light Sensitivity and Headaches From the SOFT 2020 Virtual Conference Dr. Cantrell’s workshop, Seizures, Light Sensitivity and Headaches will review the many triggers...
Tumor Risk and Surveillance in Trisomy 18
Dr. Stephen BraddockTumor Risk and Surveillance in Trisomy 18. Dr. Braddock discusses Wilms tumor and other conditions that a child with trisomy should be monitored for. From the SOFT 2020 Virtual...
Video – Support for the Grieving Sibling
Laura Lindroth, Director of Programming and Community Engagement at Rainbows for All Children, discusses Support for the Grieving Sibling. From the SOFT 2020 Virtual Conference....
Video – Trisomy 13 and 18: The Basics
Dr. John Carey - Trisomy 13/18 The BasicsDr Carey explains the basics of how a trisomy occurs and the differences between full, partial and mosaic. From the SOFT 2020 Virtual Conference....
