RESOURCES
Trisomy 18
Look through various resources and information about Trisomy 18
International Trisomy Alliance (ITA) Publications
Italy-O2 The International Trisomy Alliance (ITA) website is no longer in use. This organization has produced many excellent publications which families can read and...
Video – 2022 SOFT Medical Advisory Board Round Table
First ever SOFT Medical Advisory Board Round TableRecorded March 18, 2022 Featuring: Dr. John C. Carey Dr. Glenn Green Dr. James Hammel Dr. Shaji Menon Dr. Scott Showalter This video is the replay...
Video – Perspectives on the Care and Management of Children with Trisomy 13 and 18 Syndromes
Intermountain Children's Primary Hospital - Pediatric Grand Rounds John C. Carey, MD, MPH, FAAP, FACMG Emeritus ProfessorUniversity of Utah School of MedicinePediatric Genetics Primary Children’s...
SOFT 2021 Candle Lighting Remembrance Ceremony
From the SOFT 2021 Virtual Conference This is the replay of the 2021 Candle Lighting Remembrance Ceremony. Join us as we remember and honor our SOFT Angels.
Finding Words for our Grief
From the SOFT 2021 Virtual Conference Cora Welsh, M.A., CCLSRev. Matt Norvell, DMin., M.S., B.C.C. Pediatric Chaplain
Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health
From the SOFT 2021 Virtual Conference. Dr. Steven Cantrell, OD - Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health.
Supplemental Needs Trusts
From the SOFT 2021 Virtual ConferenceSupplemental Needs TrustsDaniel A. Kautz discusses what parents of children and adults with Trisomy conditions need to know about setting up Special Needs Trusts...
Fitting and Adjusting Mobility Equipment
From the SOFT 2021 Virtual ConferenceFitting, Adjusting and Modifying Mobility Equipment - Strategies for Adults and Children with Trisomies Michael J. Workman PT C/NDT