RESOURCES
Parenting Resources
Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new information has become available and is the only known resource of its kind. The updated book is available here in English (click the cover), Spanish and Portuguese (click the links below). Please feel free to reproduce as many copies as desired (but don’t change any of the text).

Trisomy 18 vs Edwards Syndrome, Trisomy 13 vs Patau Syndrome: What’s the Real Difference
SOFT Annual Conference Recap 2026 | Trisomy Families
Trisomy 18, 13 and 9 Book Requests Reach Families
Izzy’s Story: Defying Every Expectation with Trisomy 13
Ryan’s Story: How One Trisomy 18 Family Helped Shape SOFT and Change the Narrative
Trisomy 18 Trisomy 13 Care Collaborative Lurie Childrens
We Need Your Photos! SOFT 40th Annual Conference 2026
Caitlin’s Story: A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families
A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families Watch and Listen to Caitlin’s Story We invite you to experience Nancy’s story in the format...


































