RESOURCES
Parenting Resources
Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new information has become available and is the only known resource of its kind. The updated book is available here in English (click the cover), Spanish and Portuguese (click the links below). Please feel free to reproduce as many copies as desired (but don’t change any of the text).

2024 Trisomy 18 Medical Panel – Expert Insights During Trisomy Awareness Month
As part of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) proudly hosted a medical panel dedicated to Trisomy 18 (Edwards syndrome). This recorded session features leading...
Trisomy 13 Medical Panel – Trisomy Awareness Month 2024
In recognition of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) was honored to host a special panel discussion focused on Trisomy 13. This expert-led session brought together...
SOFT Member Spotlight – Jeri Kelley
A Journey of Strength and Love: Jeri Kelley’s Trisomy 13 Story Introduction When a parent receives an unexpected medical diagnosis for their child, their world changes in an instant. For...
SOFT Member Spotlight – Lori Reite
A Love Beyond Diagnosis: Lori Reite’s Trisomy Journey with Joey Introduction For many parents, learning about a trisomy diagnosis can be overwhelming and filled with uncertainty. But for...
SOFT Member Spotlight – Yanira Miller
A Journey of Love and Resilience: Yanira Miller’s Story with Melia Introduction Parenthood is a journey of unexpected twists and profound love, and for Yanira Miller, this journey took an...
SOFT Member Spotlight – Sara Chappell
Embracing Love and Hope: Sara Chappell’s Journey with Nora Introduction The journey of parenthood is full of surprises, but for Sara Chappell, the birth of her daughter, Nora, brought an entirely...
SOFT Member Spotlight – Samia Hussain
A Mother’s Unwavering Love: Samia Hussain’s Journey with Muhammad Abdullah Ali Introduction Parenthood is often unpredictable, but for Samia Hussain, the journey took an unexpected turn...
SOFT Member Spotlight – Kenendy Jarrell
A Journey of Strength: Kennedy Jarrell’s Trisomy Story Introduction Life often presents unexpected challenges, and for Kennedy Jarrell, one of those challenges came in the form of a trisomy...