RESOURCES
Expecting A Child
When Love and Strength Lead the Way: A Trisomy 18 Story in The New York Times
Our hearts are full seeing Jacqueline and Noah's story in The New York Times! This beautiful family represents what we know to be true - every child's story matters, every family's love is powerful,...
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 –...
2024 Trisomy 18 Medical Panel – Expert Insights During Trisomy Awareness Month
As part of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) proudly hosted a medical panel dedicated to Trisomy 18 (Edwards syndrome). This recorded session features leading...
Trisomy 13 Medical Panel – Trisomy Awareness Month 2024
In recognition of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) was honored to host a special panel discussion focused on Trisomy 13. This expert-led session brought together...
SOFT Member Spotlight – Jeri Kelley
A Journey of Strength and Love: Jeri Kelley’s Trisomy 13 Story Introduction When a parent receives an unexpected medical diagnosis for their child, their world changes in an instant. For...
SOFT Member Spotlight – Lori Reite
A Love Beyond Diagnosis: Lori Reite’s Trisomy Journey with Joey Introduction For many parents, learning about a trisomy diagnosis can be overwhelming and filled with uncertainty. But for...
SOFT Member Spotlight – Yanira Miller
A Journey of Love and Resilience: Yanira Miller’s Story with Melia Introduction Parenthood is a journey of unexpected twists and profound love, and for Yanira Miller, this journey took an...
SOFT Member Spotlight – Sara Chappell
Embracing Love and Hope: Sara Chappell’s Journey with Nora Introduction The journey of parenthood is full of surprises, but for Sara Chappell, the birth of her daughter, Nora, brought an entirely...