RESOURCES
Trisomy 13
Video – Support for the Grieving Sibling
Laura Lindroth, Director of Programming and Community Engagement at Rainbows for All Children, discusses Support for the Grieving Sibling. From the SOFT 2020 Virtual Conference....
Video – Trisomy 13 and 18: The Basics
Dr. John Carey - Trisomy 13/18 The BasicsDr Carey explains the basics of how a trisomy occurs and the differences between full, partial and mosaic. From the SOFT 2020 Virtual Conference....
Video – Heartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18
Dr. Nicole Birge & Dr. Meaghann WeaverHeartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18. From the SOFT 2020 Virtual Conference....
Adapted Seating and Mobility
From the SOFT 2020 Virtual ConferenceMichael J. Workman PT C/NDT discusses Adapted Seating and Mobility. https://www.youtube.com/watch?v=_M6JpZ_U7QU About Michael J. Workman:Michael J. Workman PT...
Video – Advances in the Care of Newborns & Infants with Trisomy 18 and 13
From the 2020 SOFT Virtual ConferenceSession 2 of the Professionals PanelDr. Glenn Green & Dr. Shaji Menon discuss Advances in the Care of Newborns & Infants with Trisomy 18 and 13 Recorded...
Video – 2020 SOFT Virtual Conference – Welcome to Conference
From the SOFT 2020 Virtual Conference: Welcome to Conference message from SOFT founders Kris Holladay and Dr. John C. Carey and from SOFT President Barb Vanherreweghe....
Video – Perspectives on the Care of Children with Trisomy 18 and 13
From the SOFT 2020 Virtual ConferenceSession 1 of the Professionals Panel Dr. John Carey discusses Perspectives on the Care of Children with Trisomy 18 and 13. https://youtu.be/guSnYEeLW3Q
Video – Shining moments from the TRIS project
The first of a series of videos from the SOFT 2020 Virtual Conference. Deborah A. Bruns, Ph.D. shares shining moments from the TRIS project: An overview and review of activities with Deborah A....