NEWS
Trisomy Awareness Month Panel with Members of the SOFT Medical Advisory Board
Did you know that SOFT has a Medical Board? March is Trisomy Awareness Month and we have some special events planned for our members! Did you know that SOFT has a Medical Board? On March 18th we...
2022 Trisomy Awareness “SOFT” Wear Collection
March is Trisomy Awareness Month We are excited to release the 2022 Trisomy Awareness "SOFT" Wear Collection. Update: The special order of Trisomy Awareness Shirts is closed. You can still order...
The Erin Jorgensen Memorial Scholarship
When we first had our daughter Erin we imagined all of the highlights to come in her life: her first day of school, prom, going off to college, getting married. Once we were given her diagnosis,...
Lean on Us: An Overview and Review of TRIS Project Activities
From the SOFT 2021 Virtual Conference Lean on Us: An Overview and Review of TRIS Project ActivitiesDeborah A. Bruns PhD The Tracking Rare Incidence Syndromes (TRIS) project seeks to increase the...
2021 SOFT Run Walk or Roll
SOFT is excited to announce our first virtual Run Walk Roll! Do you want to help spread trisomy awareness? Do you like winning prizes? Do you want to help support an organization that brings you...
2021 SOFT Virtual Conference is July 19 – 25!
The 2021 SOFT Virtual Conference planning is in the final stages and we are very excited to share this event with you. The team has been working hard to make sure our virtual event feels as much...
Covid-19 Vaccination Update for Children with Trisomy
The authorization by the Food & Drug Administration of the Pfizer vaccine for children ages 12 to 16 years and the strong recommendation by the Centers for Disease Control & Prevention (CDC)...
2021 Kari Holladay “SOFT Friends” Video Submission
Submission for the 2021 SOFT Friends Video is now closed. ------------------ ALL CALL for pictures for the SOFT Friends Video We invite you to be a part of the annual Kari Holladay "SOFT Friends"...
The SOFT Trisomy Strong Bow Collection
Introducing our new SOFT Trisomy Strong bows, streamers and zipper pulls, available in a variety of Awareness Colors. These adorable "SOFT" accessories can help you raise awareness during Trisomy...