NEWS
Covid-19 Vaccination Update for Children with Trisomy
The authorization by the Food & Drug Administration of the Pfizer vaccine for children ages 12 to 16 years and the strong recommendation by the Centers for Disease Control & Prevention (CDC)...
2021 Kari Holladay “SOFT Friends” Video Submission
Submission for the 2021 SOFT Friends Video is now closed. ------------------ ALL CALL for pictures for the SOFT Friends Video We invite you to be a part of the annual Kari Holladay "SOFT Friends"...
The SOFT Trisomy Strong Bow Collection
Introducing our new SOFT Trisomy Strong bows, streamers and zipper pulls, available in a variety of Awareness Colors. These adorable "SOFT" accessories can help you raise awareness during Trisomy...
Remembering our SOFT Angels – A Trisomy Awareness Month event
To honor our SOFT Trisomy Angels, we will hold our 2nd annual Trisomy Awareness Month "Remembering our Angels" Candle lighting event on Saturday March 6, 2021 at 9pm ET. Whether you hold your child...
2021 SOFT Trisomy Awareness Month Video Blast
Join us for the Trisomy Awareness Month video blast! The Trisomy Awareness Month video blast is coming and we hope you will join us. We are going to blast social media with short 60 second...
Trisomy Awareness Month Products and Tools
March is Trisomy Awareness Month! Trisomy Awareness Month is the time when we share awareness and education of Trisomy conditions, celebrate our children who are beating the odds and remember our...
Trisomy 18 Long-Term Survivors Survey
If your child with Trisomy 18 is or was a long-term survivor (1+ years) please help with this study conducted by the Trisomy 18 Registry.
Video – SOFT 2020 Virtual Conference Closing Event
This video is a replay of the SOFT 2020 Virtual Conference delivered by Josh Bradley.From the SOFT 2020 Virtual Conference. https://youtu.be/Rm6kJvN0_5Y
Video – Update 2020 on Seizures, Light Sensitivity and Headaches
Dr. Steven Cantrell - Seizures, Light Sensitivity and Headaches From the SOFT 2020 Virtual Conference Dr. Cantrell’s workshop, Seizures, Light Sensitivity and Headaches will review the many triggers...
