NEWS
March is Trisomy Awareness Month
It's March and in SOFT's world that means Trisomy Awareness Month! Every March our SOFT community celebrates Trisomy Awareness Month. This is a time when we share awareness and education of Trisomy...
Video – Cardiac Surgery in Infants with Trisomy 18 and Trisomy 13
A new day is dawning for our kids with heart issues. For years many of our families have had life saving surgeries denied simply because of their child's diagnosis. Dr. James Hammel at Children's...
2018 ACMG Conference
SOFT was represented at the 2018 ACMG (American College of Medical Genetics) Conference held April 10- 14, 2018 in Charlotte, NC. SOFT Attendee: Dr John C Carey, Medical Geneticist and Pediatrician,...
2015 ACMG Meeting
SOFT was among the 150 exhibits at the American Clinical Genetics Meeting sponsored by the American College of Medical Genetics and Genomes in Salt Lake City, Utah March 25- 27th, 2015. Over 2,200...
2014 ACMG MEETING
Mark, Faye and Morghan (trisomy 18) represented SOFT at the 2014 American College of Medical Genetics and Genomics (ACMG) in Nashville, TN. “I was told by several people we had the best...
TRIS Project
Trisomy 13, Trisomy 18 and related disorders ~ The TRIS Project ~ Tracking Rare Incidence Syndromes The TRIS project provides a means to change perceptions about children with rare trisomy...
SOFT Welcomes Medical Professionals
Dear Health Professional, Welcome to the SOFT (Support Organization for Trisomy 18, 13, and Related Disorders) page for health professionals. SOFT is a network of families and professionals...