NEWS
Medical Providers May Not Deny Medical Care Based on Disabilities
The New York Times reports: "Federal civil rights office rejects rationing medical care based on disability or age."The U.S. Department of Health and Human Services’ civil rights office told medical...
Triage guidelines for hospital admission during crisis
A message from Dr. John Carey, SOFT Medical Advisor Greetings to Families and Friends of SOFT, At this unreal time, let me say first that I share with all the intense and widespread concerns and...
Important Update Regarding 2020 SOFT Conference
To Our SOFT Family: SOFT is an organization that has always and will always put families first. In light of the arrival of COVID-19 in the United States, the Board of Directors convened to discuss...
A Message from the SOFT Medical and Scientific Advisory Board Regarding Covid-19
To Our SOFT Family: You likely know by now that the 2020 SOFT Conference will be postponed until July 2021 due to concerns for our health related to the coronavirus. While updates on COVID-19...
March is Trisomy Awareness Month
It's March and in SOFT's world that means Trisomy Awareness Month! Every March our SOFT community celebrates Trisomy Awareness Month. This is a time when we share awareness and education of Trisomy...
Video – Cardiac Surgery in Infants with Trisomy 18 and Trisomy 13
A new day is dawning for our kids with heart issues. For years many of our families have had life saving surgeries denied simply because of their child's diagnosis. Dr. James Hammel at Children's...
2018 ACMG Conference
SOFT was represented at the 2018 ACMG (American College of Medical Genetics) Conference held April 10- 14, 2018 in Charlotte, NC. SOFT Attendee: Dr John C Carey, Medical Geneticist and Pediatrician,...
2015 ACMG Meeting
SOFT was among the 150 exhibits at the American Clinical Genetics Meeting sponsored by the American College of Medical Genetics and Genomes in Salt Lake City, Utah March 25- 27th, 2015. Over 2,200...