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Developmental Pediatrics and the Medical Home

Developmental Pediatrics and the Medical Home

From the 2011 Chicago SOFT Conference This workshop, presented by Larry W. Desch, MD, FAAP Advocate: Hope Children’s Hospital focuses on the need for special needs children to have a Medical Home. Children with Special Health Care Needs There are children with special...

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Trisomy 18, Trisomy 13  and Related Disorder Syndromes

Trisomy 18, Trisomy 13 and Related Disorder Syndromes

Workshop Presentation from the 2011 SOFT Conference in Chicago Presenters: Dr. John Carey and Dr. Jeannette Israel This genetic syndrome overview workshop was presented by Dr. Carey and Dr. Israel, with Dr. Carey presenting some quick genetics of chromosomes, then...

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One Family’s Birth Plan

One Family’s Birth Plan

This birthing plan, for a child with trisomy 18, was prepared by Patricia Lawson, a trisomy parent. Parents:  Elliott & Patti LawsonChild:  Regan Adeline After our daughter Regan was diagnosed with Full Trisomy 18 at twenty weeks our lives...

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