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Find resources and information about Trisomy 18, Trisomy 13, Related Disorders, Surgeries and more.

One Family’s Birth Plan

by Jack and Dianna Aubele | Aug 15, 2011 | Expecting A Child, Related Disorders, Resources, Trisomy 13, Trisomy 18, Trisomy 9 | Birth, Birth Plan, birth plan page, Expecting a Child, genetic counceling, hospice, Palliative care, prenatal diagnosis, prenatal screening, Related Disorders, Trisomy 13, Trisomy 18, Trisomy 9

This birthing plan, for a child with trisomy 18, was prepared by Patricia Lawson, a trisomy parent. Parents: Elliott & Patti LawsonChild: Regan Adeline After our daughter Regan...

Changes in Prevalence and Outcomes in Children with Trisomy 18 & 13

by Jack and Dianna Aubele | Apr 7, 2011 | Expecting A Child, Medical Professionals, Trisomy 13, Trisomy 18 | Birth, Prevalence

PROFESSIONAL VIEWPOINT: Journal Club IRVING C., RICHMOND S, WREN C, LONGSTER C, AND EMBLETON ND. 2011. CHANGES IN PREVALENCE AND OUTCOME FOR TRISOMIES 13 AND 18: A...

Cardiac Surgery in Patients with Trisomy 18

by Jack and Dianna Aubele | Jan 25, 2011 | Medical Professionals, Surgery, Trisomy 18 | Cardiac, Heart Surgery, Surgery, Trisomy 18

PROFESSIONAL VIEWPOINT: Journal Club KANEKO Y, KOBAYASHI J, IKUYA I, ET AL. 2009. CARDIAC SURGERY IN PATIENTS WITH TRISOMY 18. PEDIATR CARDIOL 30:729-734. This work, accomplished by...

SOFT Welcomes Medical Professionals

by SOFT | Jul 16, 2009 | Medical Professionals, News | Medical Pros

Dear Health Professional, Welcome to the SOFT (Support Organization for Trisomy 18, 13, and Related Disorders) page for health professionals. SOFT is a network of families and professionals...

Trisomy in Review

by Jack and Dianna Aubele | Jan 26, 2005 | Medical Professionals, Related Disorders, Surgery, Trisomy 13, Trisomy 18, Trisomy 9 | Heart Defects, Partial Trisomy 18, Related Disorders, Screening & Diagnosis, Surgery, Survival, Trisomy 13, Trisomy 18

Trisomy 18, 13, & Related Disorders A Research Newsletter For Health Professionals Issue Number 1, Spring, 1993 (note: the guidance table below was updated in 2005) The following pages are from...

Health Supervision & Anticipatory Guidance for Infants & Children with Trisomy 18 & 13

by Jack and Dianna Aubele | Jan 1, 2005 | Expecting A Child, Medical Professionals, Parenting A Child, Related Disorders, Trisomy 13, Trisomy 18 | Parenting, Recommendations, Related Disorders, Screening & Diagnosis, Trisomy 13, Trisomy 18

The Table below is extracted from the SOFT Trisomy in Review Research Newsletter, first published in 1993 and updated in 2005. It is meant to provide a framework and checklist for medical care,...

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