RESOURCES
Surgeries
Augustinas Berankis – Trisomy 13
"He has taught us so much already! We are blessed to have Augustinas in our family." When my pregnancy reached eighteen weeks, we had an ultrasound that resulted in Patau syndrome as my son’s...
The SOFT Trisomy Strong Bow Collection
Introducing our new SOFT Trisomy Strong bows, streamers and zipper pulls, available in a variety of Awareness Colors. These adorable "SOFT" accessories can help you raise awareness during Trisomy...
Arleth Alcantara – Trisomy 13
"It was hard, but not impossible, because my love for Arleth and her eagerness to live, gave me the strength I needed to go on." Arleth was born at 35 weeks and 6 days. She weighed 5 pounds and 13...
Cece Havre – Trisomy 18 Mosaic
Cece knows love, she cares when someone is sad, and she will burst out laughing for no reason. She is just a blessing to our family. Cecilia was born at 36 weeks. She was my fourth pregnancy and...
Remembering our SOFT Angels – A Trisomy Awareness Month event
To honor our SOFT Trisomy Angels, we will hold our 2nd annual Trisomy Awareness Month "Remembering our Angels" Candle lighting event on Saturday March 6, 2021 at 9pm ET. Whether you hold your child...
Sarah Catherine – Trisomy 18
We see life through a completely new lens, and we know she isn’t an accident, a fluke, or a clump of cells - but a valuable part of God’s beautiful plan, and a daily reminder of what’s truly...
Newborns with trisomy 13 or 18 can benefit from heart surgery
Republished with permission. Infants with the genetic disorders trisomy 13 or 18 are more likely to survive if they undergo heart surgery, a study from researchers at Stanford and the University of...
2021 SOFT Trisomy Awareness Month Video Blast
Join us for the Trisomy Awareness Month video blast! The Trisomy Awareness Month video blast is coming and we hope you will join us. We are going to blast social media with short 60 second...