BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
Trisomy Awareness Month Spotlight – Carisa Peterson
What is something unique and special about your child with trisomy that you wish more people knew? All of us know the exact moment we received the diagnosis. Jameson was to be my Angel baby, and I found out at 12 weeks pregnant that he was “incompatible with life”....
Trisomy Awareness Month Spotlight – Kaylee Wallace
What is something unique and special about your child with trisomy that you wish more people knew? No matter the diagnosis he was still so strong and fought so hard During Trisomy Awareness Month, what message would you like to share with the world about your family's...
Trisomy Awareness Month Spotlight – Cat Leopard
What is something unique and special about your child with trisomy that you wish more people knew? Adelyn is an extrovert and loves interacting with people. She may not use words, but she definitely communicates, Adelyn is my little rockstar. I was teaching fitness...
Trisomy Awareness Month Spotlight – Megan Reynolds
What is something unique and special about your child with trisomy that you wish more people knew? David is very independent. He can climb furniture and stairs. He crawls, can walk with the assistance of a gait trainer, and can use some sign language or talks with his...
Trisomy Awareness Month Spotlight – Michelle Kerley
What is something unique and special about your child with trisomy that you wish more people knew? She’s taught me the meaning of pure love. I have never experienced a love like hers. Why do you believe raising awareness about trisomy conditions is important, and how...
Trisomy Awareness Month Spotlight – Kristin Conzalino
What is something unique and special about your child with trisomy that you wish more people knew? Noralee made quite an impact in her short time here, not only for her parents, her brothers and sister, but for the many people who hear her story and know that each...
Trisomy Awareness Month Spotlight – Karla Webster
What is something unique and special about your child with trisomy that you wish more people knew? Reggie has been our sunshine for so many years. He's Amazing God has blessed us. He got diagnosed the day he was born March 11,1992 He will be 33 years old They said he...
Trisomy Awareness Month Spotlight – Lori Pierce
What is something unique and special about your child with trisomy that you wish more people knew? Stephanie gives the biggest & best hugs & has the most forgiving heart!! She loves everyone & always has a smile even when she's hurting. Why do you believe...
Trisomy Awareness Month Spotlight – Rona Tapia
What is something unique and special about your child with trisomy that you wish more people knew? We were told before she was born that her hands would be overlapping and that Hope would have rocker-bottom feet; however, none of these issues were present or...
Trisomy Awareness Month Spotlight – Kristen Capps
What is something unique and special about your child with trisomy that you wish more people knew? That anything is possible living with Mosaic Trisomy 13. Why do you believe raising awareness about trisomy conditions is important, and how can others make a...