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American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care

American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care

FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...

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AAP Report on Trisomy 18 and 13: How New Guidance Is Changing Care for Families and Clinicians

AAP Report on Trisomy 18 and 13: How New Guidance Is Changing Care for Families and Clinicians

A Historic Shift in Trisomy Care The AAP Report on Trisomy 18 and 13 represents one of the most significant shifts in neonatal ethics and family care in decades.In this episode of the SOFT Podcast, Executive Director Nick Holladay speaks with Dr. Alaina Pyle,...

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Trisomy Spotlight – Chapman

Trisomy Spotlight – Chapman

What is something unique and special about your child with trisomy that you wish more people knew? Chapman was so aware! He had the best clenched fists ever. His hands were my favorite! His eyes would just stare right into your soul. He knew when Mommy and Daddy were...

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