BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
Trisomy Awareness Month: Medical Panel Answers Family Questions for Talking Trisomy Podcast
Trisomy Awareness Month: Medical Panel Answers Family Questions As part of Trisomy Awareness Month 2026, Talking Trisomy convened a panel of experienced clinicians to address questions submitted by families navigating trisomy 13 and trisomy 18. Hosted by Nick Holliday...
February 2026 Donations: Honoring Lives and Supporting Trisomy Families | SOFT
February 2026 Donations: Honoring Lives and Supporting Trisomy Families | SOFT At SOFT, every donation carries a story. Some are given in celebration—marking birthdays, milestones, and the joy children with trisomy bring to their families. Others are given in...
Trisomy 9 Families & Experts Share Stories, Research, and Support | Talking Trisomy
Talking Trisomy: Families, Experts, and the Future of the Trisomy 9 Community For many families, receiving a Trisomy 9 diagnosis can feel isolating and overwhelming. Because Trisomy 9 is rare, parents often struggle to find reliable, up-to-date information about the...
Rose’s Story – Trisomy 18, Advocacy, and the Power of Informed Care
Trisomy 18, Advocacy, and the Power of Informed Care Receiving a prenatal diagnosis of Trisomy 18 (Edwards syndrome) often marks a sudden and disorienting shift for families. What begins as anticipation can quickly become a landscape of medical terminology,...
Trisomy 13 Medical Panel – Trisomy Awareness Month 2026
Trisomy 18 Medical Panel – Trisomy Awareness Month 2026
With Gratitude: Honoring Our January 2026 SOFT Donors
SOFT gratefully recognizes our January 2026 donors whose generosity supports families affected by Trisomy 13 and Trisomy 18 through education, remembrance, and community. As we begin 2026, we are deeply grateful for the generosity shown to SOFT in January. Each...
Living With Trisomy 18:
Choosing The ‘Life Narrative’ For Izzie
Introduction Families who receive a diagnosis like Trisomy 18 are often introduced to their child’s story through statistics, grim predictions, and assumptions about what life will—or will not—look like. Information is fragmented, perspectives are narrow, and hope is...
Trisomy 9: A Parent’s Story of Hope, Progress, and Support
Families navigating a Trisomy 9 diagnosis are often met with uncertainty, limited information, and a wide range of possible outcomes. Because Trisomy 9 is rare and highly variable, many parents find themselves searching for answers that are difficult to locate in one...
SOFT Gifts: Honoring Our December 2025 donors
As 2025 came to a close, SOFT was deeply honored by the generosity shown in December by individuals, families, and organizations committed to supporting those affected by Trisomy 13, Trisomy 18, and related conditions. Each contribution—whether given monthly, in...






































