BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
Trisomy Awareness Month Spotlight – Brandi Tyo
What is something unique and special about your child with trisomy that you wish more people knew? Blaine had the most beautiful golden hair. Her favorite spot was skin to skin with her mommy. She let you know when it was almost time to eat, she wouldn’t let you...
Trisomy Awareness Month Spotlight – Alexandra Anthony
What is something unique and special about your child with trisomy that you wish more people knew? Ayla was born at 30 weeks and has been a fighter since the day she was born. She is feisty, sweet, and so so strong. Even though she was born 10 weeks early at 2lb 2oz,...
Trisomy Awareness Month Spotlight – Shernette Thompson
What is something unique and special about your child with trisomy that you wish more people knew? He is full of life, an energizer bunny. Sitting and moving about on his own. He is unstoppable. Why do you believe raising awareness about trisomy conditions is...
Trisomy Awareness Month Spotlight – Heather Anderson
What is something unique and special about your child with trisomy that you wish more people knew? Currently thriving, but comes with a vast amount of health conditions encompassing his whole body. Why do you believe raising awareness about trisomy conditions is...
Trisomy Awareness Month Spotlight – Lydia Sparks
What is something unique and special about your child with trisomy that you wish more people knew? Joshua is so amazing and motivated to reach his goals! Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?...
Trisomy Awareness Month Spotlight – Kirsten Dyer
What is something unique and special about your child with trisomy that you wish more people knew? Theodore has a very large hole in his heart but that doesn't stop us from filling it with love. He is a very happy boy who loves hearing/feeling piano music. Even with...
Trisomy Awareness Month Spotlight – Rene Hernandez
What is something unique and special about your child with trisomy that you wish more people knew? I just miss her and she was a strong little girl. I wish people know how hard she fought for her life until she couldn't deal with the pain. Why do you believe raising...
Trisomy Awareness Month Spotlight – Jrene Anders
What is something unique and special about your child with trisomy that you wish more people knew? Cassandra lived 27 years was full of love and happiness. Why do you believe raising awareness about trisomy conditions is important, and how can others make a...
Trisomy Awareness Month Spotlight – Gina Csontos
What is something unique and special about your child with trisomy that you wish more people knew? His smile and curiosity. He was always very welcoming and loved hugs. Why do you believe raising awareness about trisomy conditions is important, and how can others make...
Trisomy Awareness Month Spotlight – Victoria Rico
What is something unique and special about your child with trisomy that you wish more people knew? She loves music! Tangled is her favorite right now. She is amazing, she loves to fight with her brother and argue with her dad. although she’s non verbal, Ella has just...