BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
Trisomy Awareness Month Spotlight – Carla Adams
What is something unique and special about your child with trisomy that you wish more people knew? Chapman was so aware! He had the best clenched fists ever. His hands were my favorite! His eyes would just stare right into your soul. He knew when Mommy and Daddy were...
Trisomy Awareness Month Spotlight – Heidi Gano
What is something unique and special about your child with trisomy that you wish more people knew? Aryabelle is a truly unique individual. Despite her diagnosis, she is generally a cheerful baby girl. While her mood can vary, she often rewards those around her with...
Trisomy Awareness Month Spotlight – Mira Lopez
What is something unique and special about your child with trisomy that you wish more people knew? She graduated, went to prom and visit her sister and family in South Dakota 3 weeks prior to her passing. Her favorite thing was water and her pop ball toy and musical...
Trisomy Awareness Month Spotlight – Diana Moran
What is something unique and special about your child with trisomy that you wish more people knew? Every case is different, we should give all kids a chance. Why do you believe raising awareness about trisomy conditions is important, and how can others make a...
Trisomy Awareness Month Spotlight – Kathy and Joe Shnowski
What is something unique and special about your child with trisomy that you wish more people knew? We received her diagnosis when I was 7 months pregnant, they said it was terminal. She entered this world on Nov 22, 1991 and she wrote her own story, she lived 5.5...
Trisomy Awareness Month Spotlight – Adela Malave
What is something unique and special about your child with trisomy that you wish more people knew? Hola SOFT families this is Vanessa and she just turned 21! We are so very blessed to have her in our lives as she is quite sassy and we love her sweet smiles! Her smiles...
SOFT Newsletter – September 2025
Dear SOFT Families and Friends, The SOFT Newsletter is back! For many years, the printed newsletter was a treasured way our community connected, celebrated, and lifted each other up. Now, we’re bringing that tradition into your inbox—fresh, renewed, and filled with...
Trisomy Awareness Month Spotlight – Orchid Welgemoed
What is something unique and special about your child with trisomy that you wish more people knew? She had big brown eyes and lots of beautiful black hair. Splitting image of her daddy. Why do you believe raising awareness about trisomy conditions is important, and...
Trisomy Awareness Month Spotlight – Christiane Cuadros
What is something unique and special about your child with trisomy that you wish more people knew? Christopher is such a loving little man. He adores his family. He speaks with his eyes and facial expressions. He's a lot smarter then anyone gives him credit for. He's...
Trisomy Awareness Month Spotlight – Christina Cardoza
What is something unique and special about your child with trisomy that you wish more people knew? Teddy was so happy and had a great quality of life. We were told he would probably never even know who we were but he clearly knew his parents, his sister and his...