BLOGS
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
Trisomy Awareness Month Spotlight – Renae Bradley
What is something unique and special about your child with trisomy that you wish more people knew? Dawson is an amazing little boy. He was the joy of our family for 18 years. He could tell you he loved you just in his facial expressions and sounds. Although he never...
Trisomy Awareness Month Spotlight – Kelly Hernandez
What is something unique and special about your child with trisomy that you wish more people knew? Akaiya has a wicked sense of humor. She likes to play tricks on people. Akaiya also loves chaos - the more people, noise and movement the better for her. Why do you...
Trisomy Awareness Month Spotlight – Terre Krotzer
What is something unique and special about your child with trisomy that you wish more people knew? We believe that Krissy chose this life and it is our job to help her live her best life. She is here to teach those around her about love and strength and belief. In...
Trisomy Awareness Month Spotlight – Matilda Mongson
What is something unique and special about your child with trisomy that you wish more people knew? With all the disabilities, , she smiles sometimes, and she eat through her mouth Why do you believe raising awareness about trisomy conditions is important, and how can...
Trisomy Awareness Month Spotlight – Lynne Stockman
What is something unique and special about your child with trisomy that you wish more people knew? Lyndsay eats food by mouth even though she has a G-tube which we mainly use for liquids and meds. She loves Mylar balloons and kisses. Why do you believe raising...
Trisomy Awareness Month Spotlight – Raquel Wagner
What is something unique and special about your child with trisomy that you wish more people knew? Ashton is happy. She’s smart. She’s a funny young woman with a huge attitude! She’s nothing like what the drs told us that she would be. Why do you believe raising...
Trisomy Awareness Month Spotlight – Joshua Banks
What is something unique and special about your child with trisomy that you wish more people knew? Faith was an inspiration far beyond the short time we spent with her. She provided a purpose to our lives we never knew we had. Since her birth and passing, she has...
Trisomy Awareness Month Spotlight – Nadin Koharic
What is something unique and special about your child with trisomy that you wish more people knew? She had the cutest nose and she calmed down when I held her in my arms. I still remember how soft and warm her forehead felt when I kissed her for the first time. Why do...
Trisomy Awareness Month Spotlight – Kris & Hal Holladay
What is something unique and special about your child with trisomy that you wish more people knew? Kari's smile was amazing! Just by a smile, she would touch hearts! Although she didn't speak, she "talked" through her eyes and face. Sometimes, she would look at me...