BLOGS
Arleth Alcantara – Trisomy 13 – En Español
"Pero no fue imposible porque el amor y las ganas de vivir de Arleth me dieron las fuerzas que necesitaba." Arleth nació a las 35 semanas y seis días de 5 libras y 13 onzas. Estuvo 23 días en UCIN. Fue bautizada en el hospital porque supuestamente nunca iba a salir...
Arleth Alcantara – Trisomy 13
"It was hard, but not impossible, because my love for Arleth and her eagerness to live, gave me the strength I needed to go on." Arleth was born at 35 weeks and 6 days. She weighed 5 pounds and 13 ounces. She spent 23 days in the NICU, so she was baptized there since...
Cece Havre – Trisomy 18 Mosaic
Cece knows love, she cares when someone is sad, and she will burst out laughing for no reason. She is just a blessing to our family. Cecilia was born at 36 weeks. She was my fourth pregnancy and fourth C-Section. At my twenty week scan I was told Cecilia would need...
Remembering our SOFT Angels – A Trisomy Awareness Month event
To honor our SOFT Trisomy Angels, we will hold our 2nd annual Trisomy Awareness Month "Remembering our Angels" Candle lighting event on Saturday March 6, 2021 at 9pm ET. Whether you hold your child in your heart or in your arms, we invite all of our SOFT families to...
Sarah Catherine – Trisomy 18
We see life through a completely new lens, and we know she isn’t an accident, a fluke, or a clump of cells - but a valuable part of God’s beautiful plan, and a daily reminder of what’s truly important. In the Fall of 2018, we learned we were being blessed with another...
La Historia de SOFT
“Los comienzos” La historia de SOFT: Organización de Apoyo para las Trisomías 18, 13 y Trastornos Relacionados. Escrito por Kris Holladay. Recuerdo a…Brandy Woodcox. Nunca olvidaremos su nombre en nuestra familia. Fue en noviembre de 1977 cuando Kari tenía tan solo...
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Newborns with trisomy 13 or 18 can benefit from heart surgery
Republished with permission. Infants with the genetic disorders trisomy 13 or 18 are more likely to survive if they undergo heart surgery, a study from researchers at Stanford and the University of Arkansas has found. Heart surgery significantly decreases in-hospital...
2021 SOFT Trisomy Awareness Month Video Blast
Join us for the Trisomy Awareness Month video blast! The Trisomy Awareness Month video blast is coming and we hope you will join us. We are going to blast social media with short 60 second videos to inform and educate people about our SOFT kids and their...
Trisomy Awareness Month Products and Tools
March is Trisomy Awareness Month! Trisomy Awareness Month is the time when we share awareness and education of Trisomy conditions, celebrate our children who are beating the odds and remember our sweet Angels who left us far too soon. Trisomy Awareness Month is not...