BLOGS
Remembering our SOFT Angels – A Trisomy Awareness Month event
To honor our SOFT Trisomy Angels, we will hold our 2nd annual Trisomy Awareness Month "Remembering our Angels" Candle lighting event on Saturday March 6, 2021 at 9pm ET. Whether you hold your child in your heart or in your arms, we invite all of our SOFT families to...
Sarah Catherine – Trisomy 18
We see life through a completely new lens, and we know she isn’t an accident, a fluke, or a clump of cells - but a valuable part of God’s beautiful plan, and a daily reminder of what’s truly important. In the Fall of 2018, we learned we were being blessed with another...
La Historia de SOFT
“Los comienzos” La historia de SOFT: Organización de Apoyo para las Trisomías 18, 13 y Trastornos Relacionados. Escrito por Kris Holladay. Recuerdo a…Brandy Woodcox. Nunca olvidaremos su nombre en nuestra familia. Fue en noviembre de 1977 cuando Kari tenía tan solo...
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Newborns with trisomy 13 or 18 can benefit from heart surgery
Republished with permission. Infants with the genetic disorders trisomy 13 or 18 are more likely to survive if they undergo heart surgery, a study from researchers at Stanford and the University of Arkansas has found. Heart surgery significantly decreases in-hospital...
2021 SOFT Trisomy Awareness Month Video Blast
Join us for the Trisomy Awareness Month video blast! The Trisomy Awareness Month video blast is coming and we hope you will join us. We are going to blast social media with short 60 second videos to inform and educate people about our SOFT kids and their...
Trisomy Awareness Month Products and Tools
March is Trisomy Awareness Month! Trisomy Awareness Month is the time when we share awareness and education of Trisomy conditions, celebrate our children who are beating the odds and remember our sweet Angels who left us far too soon. Trisomy Awareness Month is not...
2021 Trisomy Awareness Month Product Order Form
Trisomy 18 Long-Term Survivors Survey
If your child with Trisomy 18 is or was a long-term survivor (1+ years) please help with this study conducted by the Trisomy 18 Registry.
Claire L – Trisomy 13
We have had a really happy, healthy second year with Claire! She’s been to the beach and is learning to crawl. She loves music, especially Raffi, and is very ticklish. At our 20 week anatomy scan, we were shocked. Our baby’s eyeballs were so underdeveloped, the doctor...
