NEWS

Tumor Risk and Surveillance in Trisomy 18

by Terre Krotzer | Jul 21, 2020 | Medical Professionals, News, Parenting A Child, Resources, Trisomy 18 | Dr. Stephen Braddock, Trisomy 18, tumor, tumor risk, Virtual Conference, wilms tumor

Dr. Stephen BraddockTumor Risk and Surveillance in Trisomy 18. Dr. Braddock discusses Wilms tumor and other conditions that a child with trisomy should be monitored for. From the SOFT 2020 Virtual...

Video – Support for the Grieving Sibling

by Terre Krotzer | Jul 21, 2020 | Beyond Goodbye, Blog, News, Resources | Grief, grieving children, grieving sibling, Loss, Siblings, Virtual Conference

Laura Lindroth, Director of Programming and Community Engagement at Rainbows for All Children, discusses Support for the Grieving Sibling. From the SOFT 2020 Virtual Conference....

Video – Trisomy 13 and 18: The Basics

by Terre Krotzer | Jul 20, 2020 | Blog, Expecting A Child, News, Parenting A Child, Related Disorders, Resources, Trisomy 13, Trisomy 18, Trisomy 9 | Dr. John Carey, Genetics, Mosaic, partial, related disorder, Trisomy 13, Trisomy 18

Dr. John Carey - Trisomy 13/18 The BasicsDr Carey explains the basics of how a trisomy occurs and the differences between full, partial and mosaic. From the SOFT 2020 Virtual Conference....

Video – Heartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18

by Terre Krotzer | Jul 19, 2020 | Blog, Expecting A Child, Medical Professionals, News, Parenting A Child, Resources, Surgery, Trisomy 13, Trisomy 18 | cardiac surgery, Omaha Children's Hospital, Palliative care, Trisomy 13, Trisomy 18

Dr. Nicole Birge & Dr. Meaghann WeaverHeartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18. From the SOFT 2020 Virtual Conference....

Adapted Seating and Mobility

by Terre Krotzer | Jul 18, 2020 | Blog, News, Parenting A Child | 2020 virtual conference, adapted seating, adaptive seating, adaptive stroller, bath chair, gait trainer, mobility, physical therapy, stander, Virtual Conference, walker, wheelchair

From the SOFT 2020 Virtual ConferenceMichael J. Workman PT C/NDT discusses Adapted Seating and Mobility. https://www.youtube.com/watch?v=_M6JpZ_U7QU About Michael J. Workman:Michael J. Workman PT...

Video – Advances in the Care of Newborns & Infants with Trisomy 18 and 13

by Terre Krotzer | Jul 18, 2020 | Expecting A Child, Medical Professionals, News, Parenting A Child, Resources, Surgery, Trisomy 13, Trisomy 18 | airway management, cardiac care, cardiac issues, cardiac statistics, cardiac surgery, Dr. Green, Dr. Menon, Surgery, trach, Trisomy 13, Trisomy 18

From the 2020 SOFT Virtual ConferenceSession 2 of the Professionals PanelDr. Glenn Green & Dr. Shaji Menon discuss Advances in the Care of Newborns & Infants with Trisomy 18 and 13 Recorded...