BLOGS
Video – Update 2020 on Seizures, Light Sensitivity and Headaches
Dr. Steven Cantrell - Seizures, Light Sensitivity and Headaches From the SOFT 2020 Virtual Conference Dr. Cantrell’s workshop, Seizures, Light Sensitivity and Headaches will review the many triggers causing seizures and how to protect your child. Nutrition, Eye...
Tumor Risk and Surveillance in Trisomy 18
Dr. Stephen BraddockTumor Risk and Surveillance in Trisomy 18. Dr. Braddock discusses Wilms tumor and other conditions that a child with trisomy should be monitored for. From the SOFT 2020 Virtual Conference. https://www.youtube.com/watch?v=TsFS9-J03n4 About Dr....
Video – Support for the Grieving Sibling
Laura Lindroth, Director of Programming and Community Engagement at Rainbows for All Children, discusses Support for the Grieving Sibling. From the SOFT 2020 Virtual Conference. https://youtu.be/xfqQlAN9nsk About Laura Lindroth:Laura Lindroth is Director of...
Video – Trisomy 13 and 18: The Basics
Dr. John Carey - Trisomy 13/18 The BasicsDr Carey explains the basics of how a trisomy occurs and the differences between full, partial and mosaic. From the SOFT 2020 Virtual Conference. https://www.youtube.com/watch?v=NcKdIq_g-FI Dr. John C. Carey Throughout his...
Video – Heartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18
Dr. Nicole Birge & Dr. Meaghann WeaverHeartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18. From the SOFT 2020 Virtual Conference. https://youtu.be/9tQIXg84jzY About Dr. Nicole Birge:Nicole Birge M.D. is the Medical...
Adapted Seating and Mobility
From the SOFT 2020 Virtual ConferenceMichael J. Workman PT C/NDT discusses Adapted Seating and Mobility. https://www.youtube.com/watch?v=_M6JpZ_U7QU About Michael J. Workman:Michael J. Workman PT C/NDT has been a physical therapist for the past 27 years with a primary...
Video – Advances in the Care of Newborns & Infants with Trisomy 18 and 13
From the 2020 SOFT Virtual ConferenceSession 2 of the Professionals PanelDr. Glenn Green & Dr. Shaji Menon discuss Advances in the Care of Newborns & Infants with Trisomy 18 and 13 Recorded on July 15, 2020. https://www.youtube.com/watch?v=ygny9sU2j-A About...
Video – 2020 SOFT Virtual Conference – Welcome to Conference
From the SOFT 2020 Virtual Conference: Welcome to Conference message from SOFT founders Kris Holladay and Dr. John C. Carey and from SOFT President Barb Vanherreweghe. https://youtu.be/TbmUNYKFnsc
Video – Perspectives on the Care of Children with Trisomy 18 and 13
From the SOFT 2020 Virtual ConferenceSession 1 of the Professionals Panel Dr. John Carey discusses Perspectives on the Care of Children with Trisomy 18 and 13. https://youtu.be/guSnYEeLW3Q
Video – Shining moments from the TRIS project
The first of a series of videos from the SOFT 2020 Virtual Conference. Deborah A. Bruns, Ph.D. shares shining moments from the TRIS project: An overview and review of activities with Deborah A. Bruns, Ph.D. https://youtu.be/FmNMPVj971g Download Slideshow About...